The Sickle Cell Disease Association of Illinois’ (SCDAI) primary mission is to enhance the quality of life for people with sickle cell disease and their families...

To effectively achieve this goal, SCDAI acts as an advocate for improved health care and services for sickle cell patients by educating and informing the community through outreach programs.

 

Objectives:

1. To aggressively solicit funds from public and private sources to support the organization’s programs.
2. To fund research for the prevention, treatment, and cure of the disease.
3. To encourage the legislature to enact public policies that benefit sickle cell patients and their families.

Programs:

1. Provides counseling, referral services, and direct emergency grants to patients in need of food, clothing, shelter, prostheses or other necessities.
2. Sponsors a summer camp for children with sickle cell disease (ages 7-13) where campers are provided with positive values of their own self-worth.
3. Assists deserving sickle cell students with scholarships to achieve their higher education goals.
4. Sponsors a Christmas party with food, games, and gifts for children with sickle cell disease, their siblings and other family members.

The Sickle Cell Disease Association of Illinois was founded as the Midwest Association for Sickle Cell Anemia in 1971 by concerned physicians, researchers, business and community people committed to improving the lives of those suffering from sickle cell disease. We provide an organized voice for sickle cell patients in Illinois. The Sickle Cell Disease Association of Illinois remains committed to improving the lives of those with one of the sickle cell diseases.

Over the years SCDAI has energetically sought to provide program services - including community education, patient referrals, genetic counseling, research grants, college scholarships and various responses to patients’ needs.

Although there is still no cure for sickle cell anemia, improved medical procedures, new research, and increased knowledge have made life less stressful, less painful and more hopeful for persons afflicted with the disease. While SCDAI is proud of its role in raising public awareness about the debilitating effects of sickle cell anemia, there still remains an urgent need to combat the myths and inaccurate information that still surround the disease. Thus, SCDAI remains in the vanguard, combating both the disease and filling the public information void.